ISSN 1662-4009 (online)

ey0017.15-12 | (1) | ESPEYB17

15.12. A value-based healthcare approach: Health-related quality of life and psychosocial functioning in women with Turner syndrome

AT van den Hoven , LR Bons , RHM Dykgraaf , AB Dessens , H Pastoor , LCG de Graaff , MR Metselaar , A Kneppers-Swets , I Kardys , H Mijnarends , F Zweerus , JA Hazelzet , EMWJ Utens , AE van den Bosch , JW Roos-Hesselink

To read the full abstract: Clinical Endocrinology 2020;92:434–442.The authors developed and applied questionnaires to capture various aspects of health-related quality of life (HR-QoL) and psychosocial functioning in a large cohort of adult women with Turner syndrome (TS). Women with TS reported a lower HR-QoL, perceived more stress and experienced increased fatigue compared to the general population. They found a relationship between HR-Qo...